I was diagnosed on the 27th January with lung cancer but when I met oncologist I was told it was a rare Neuroendocrine cancer which had presented itself in my lung and had spread to my lymph node. It was and still is a huge learning curve for me. I have had 4 sessions of chemo and it has started shrinking the NET and affecting the lymph node. My question is once I've had 2 more chemo sessions what happens next. They have mentioned injections - does this keep cancer at bay or merely stop symptoms? Hope everyone is keeping positive.
Hi Orla and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I can't help with your questions, as I have a different type of cancer, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the page.
You could perhaps change the title of your post to something like 'what happens after chemo' so that someone who has had experience with treatment, etc after chemo spots it.
Macmillan has lots of useful information including this on treatment for NETs and also this about after NETs treatment.
While you're waiting for replies it would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Wanstead and welcome to the online community.
I'm sorry to read that you've just been diagnosed and I know what a worrying time this will be for you.
To get the most out of the online community can I recommend that you join this group as then you'll be able to start your own posts and receive emails when there is a new message in the group. To join just follow these instructions.
If you have any problems navigating the site I'd be pleased to try and help.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
