Was diagnosed just over 3 weeks ago. As yet have heard nothing about treatment as the specialist multi discipline team only meet every 4 weeks. Finding the whole situation very frightening .
I've recently been diagnosed with a Grade 1 slow growing NET on my pancreas which is about 6cm. Following discussion with medical consultant it's been suggested that I have a Whipples procedure which means removal of most of my pancreas, gall bladder...
Hi everyone, I'm new here and this is my first post. My wife was recently diagnosed with extrapulmonary neuroendocrine small cell carcinoma, which presented in the breast, including one lymph node. It was described by her oncologist as localised, as...
Hi I’ve just had initial tests for carcinoid syndrome. Lots of symptoms & I have had them for a while but not connected them. I have flushes & high blood pressure & already seem to be controlling it a little with diet. But waiting for results is so scary...
Hi its gillyfrog. I have the same as you mine started in small bowl as it was so long before my gp took action sooner its traveled to liver wall gut and Heart. I have had treatment at guys after a short spell on laritide injections. Which i still have...
Hi, New here. I was diagnosed in December 2021. Net in my stomach. It was found by accident. Since then I have had a polypectomy to try and remove it. This was unsuccessful. I now await another procedure. An EMR? Apparently this will be around march/April...
Hello
Hi, my son who is 25 has been diagnosed with this, I'm looking for any support or people to talk to with similar. Don't really know where to start or what to say any help greatfully received
Hello everyone. My head is in a spin. I found out yesterday that I have neuroendocrine colorectal cancer. An op is going to be on the cards in about 4 weeks.
Hi Everyone. I'm new to the group. I've just been told by my IBD nurse today that I'm being referred to the colorecretal nurses. My latest MRI has shown something other than my Crohns stricture and they think it is cancer so I'm have an octreotide scan...
