Hi does anyone have experience of mets to caudate lobe?
does anyone else feel abandoned by their medical team? i was told wearing a necklace and lipstick was a good sign of cancer recovery last week by the surgical reg. i would also like to say hello since i cant find the right bit to do this with on the forum...
i would like to know if anyone else has been told to self medicate and live with post distal pancreatic surgery pain. I wished i had joined at the start. i am utterly overwhelmed with it all, and yet i am ticking over. i would love to have people to talk...
hello for the all group members. Hello dear all Tpn users. I wish everyone has good time with their tpn. I have a question for tpn users. I am daily 4.5 lt tpn patient. And i was in hospital since 3 weeks because i have had very bad cramps and pain...
Hello, Sadly, my mum has just been diagnosed with Net Cancer. She has a mass of tumours on her liver. Scans, blood tests, urine and biopsy can pin point the source of the cancer. Surgery hasn’t been offered. She will start chemotherapy in a couple of...
Hi, has anyone suffered from any stomach pain as soon as the Capecitabine hits their stomach? I am 5 years since diagnosis so in a very different place to where I was in 2018 when I gad the same chemo tablets. The Temozolomide makes me sick but I don...
Is anyone taking this drug for their cancer?
Hi I am wondering what peoples experience is following no evidence of disease found - following diagnosis of stage 4 neuroendocrine cancer previously I was told I was cancer free as stage 3 tumours removed with good margins only to shortly be diagnosed...
Hello dear All i want to get sone more idea from this group. I have had an operation last year 14.07.21 as symptom of Carcinoid tumour of small bowel (pT4 N1, G1 Ki67 <2%, R0, 8 of 20 lymph nodes involved by cancer. And they removed about 0.90 cm from...
Hi, does anyone have any information or experience with immunotherapy to treat NETs? I have read some articles relating to trials that have been conducted suggesting 44% response rate in high grade NETs using a combination of immunotherapy drugs, regardless...
