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Hello to all! I am 75 with newly diagnosed Myeloma after 4 years of smouldering monitoring. It is a lambda free chain myeloma. I am not transplant eligible as per my age. I was given options and thought the ISA VRd was the best although always concerned...
My first appointment with the consultant after diagnosis of Multi Myeloma is on Tuesday. Feeling very nervous as I am wondering what is ahead.
We are going through the motions ATM Every morning hurts & feels like ground hog day, like biding time for more & more & more to come, The sadness makes me feel guilty as it is my wife who is suffering with MYELOMA I'm trying so hard to do all the right...
Morning All, I am facing a start of treatment possibly December or Jan 26. I have recently had my diagnosis moved from SM to active free chain myeloma. I am still without symptoms (fit 75) but the BJ protein is shooting up in the latest tests. and the...
Hi everyone , l wanted to ask if anybody had experience of multiple myeloma coming back & how many years it took to relapse , don't get me wrong l am very positive person & believe in positive thinking but do wonder when this might return & the...
Hi New here so if I’m posting on the wrong forum that’s why. Diagnosed with smouldering myeloma 3 months ago, after a bone marrow biopsy and subsequent PET scan, so still very early stage. I’m being monitored every three months and because I have a...
Hi everyone , just been diagnosed, (multiple myeloma. ) It all happened so fast , I arrived at hospital with severe anemia. After 6 blood transfusions I felt myself again , I’m living in France and don’t speak French. I was carried along with little explanation...
Hi All i was diagnosed in June, now going on a trial next week and I not looking forward to it at all - it’s the unknown I don’t like not being in control. I was told I am high risk SMM like 80% in so now got this opportunity to do this trial with the...
Hi. Recently diagnosed with plasmacytoma and my bone marrow results aspirate has come back with 13% plasma cells, so needing systemic treatment along with some radiotherapy on the plasmacytoma on my shoulder that I am having at the moment. Anyone else...
hello, just wish to make contact on the Forum, as health is good, often we only reach out when in need of help, to everyone who has commented on my previous posts i thank you, I am still in Remmision, on 4 month checks and blood tests, but 3 month Zometa...
