New myeloma patient

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Morning All,

I am facing a start of treatment possibly December or Jan 26.  I have recently had my diagnosis moved from SM to active free chain myeloma.  I am still without symptoms (fit 75) but the BJ protein is shooting up in the latest tests. and the consultant is recommending either the Imroz (Isa-VRd (Isatuximab) or MajesTEC-7.(Dara-VRd (Daratumumab))

I was inclining myself for the Isa VRd one as the MajesTEC-7 (on trial) seems not to have been proven long enough and the level of toxicity is high. 

any experience from any of the 2 options will help. 
many thanks

carlos

  • Hi Carlos,    welcome,   but   sad that you are   coming here,     i am  68 male    MM  patient in Remmision and received the go to at the time of DVTD    4 cycles of treatment,  before stem cell harvest and  then   Transplant    19 months ago,    i dont know enough about the choices,  but sometimes the drugs are  in different levels and   combinations,      Good luck with  the treatment plan,  which ever is taken  and please keep in touch on the forum,  there is a lot of good  advice on here,  from  many people with different experiences,   we are all different,  but want the same results !   Kevin 

  • Hi Carlos and welcome to the forum. 

    Whilst I can’t answer your question about treatment, as I haven begun mine yet, I’m in a similar situation to yours. 
    My name is Jo (female) and I’m also a fit 75 year old with no symptoms  

    I was diagnosed with myeloma 10 days ago and to say it was a shock would be an understatement!  I’ve been offered Isa-VRD or DRD; I’ve opted for Isa-VRD which I appreciate is a recently approved treatment.  SCT is not an option for us over 70s.  I’ll start chemo in January as I’d like to enjoy a family Christmas first. 

    I posted on the forum last week and received supportive responses which really helped.  One was from PMartin which was especially relevant to me, as they’d experienced similar treatment and had experience as an 82 year old!

    As I’m fairly new to the Myeloma Forum I’m not sure how you can access that response though I imagine that if you look at all recent posts, you’ll locate that one. 

    I wish you well with your treatment. 

    Jo

  • Hi Jom. Thank you. I have read your post and yes we are in a similar situation although I was diagnosed with smouldering myeloma 4 years ago so I was seeing it coming. All the best. Carlos