Hello!
new here, I’m on this trial and just wondering at others experience? My nurses and triage team are awful at getting back to me etc, I had a reaction to one of my meds 2 weeks ago, co-trimaxazol
head to toe rash, took them 2 days, numerous phone caljs and emails from me for them to stop it and prescribe the yellow paint medicine instead, and finally antihistamines and centreban, all stad Wednesday finally got meds Friday, I even went and was left by a nurse to see triage on Wednesday , but they never came out,, antihistamines made me feel icky so went to have my anti-sickness,d they are now incompatible with tbe medicine so Monday I had to ring THEM, and inform them ♀️ today i rung on oncology triage and it was an answer machine! Left message, no response. Finally got through,, and they will notify radar team, I’ve had a sore throat overnight last night, no concern, monitor it, call back if needed or see GP, and they will inform trial that rash has come back— I have no faith,, I’m already terrified of this disease (diagnosed Dec) and now an infection could take me?
