Hello again everybody

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Haven’t logged in for a while as been adjusting to my weekly treatment days and abundance of pills. Feel I’ve now experienced most of the side effects, several at a time, but fortunately not all at once. 

 I’m finding restless legs hard to deal with as it lasts for several hours at a time.  A heat pad on my calf helps, as does walking and exercising my legs.  Difficult to do that at night though. 

Has anyone found anything else helpful?

I started treatment in January so have just finished two cycles and the good news is that my paraproteins have dropped considerably.  This tells me it’s worth persevering even when it doesn't always feel that way.   

I was still symptom free until December of last year.  On Boxing Day, however, I was admitted to hospital with multiple blood clots in my lungs.  I was told by one Haemotology doctor that it was connected to my myeloma, but was too poorly to ask him how. 

Had anyone else experienced this?   

Thank you,     
Jo

  • Hi  Jo,   nice to hear some good  progress,     the MM   treatments are good and worth the  constant visits and pill taking,    then if and when you are ready the   Transplant,       i am now 2 years post Stem cell transplant,  and doing good,   been in the garden,     cutting   tress down with the chain saw,   cut the grass this week,       i walk the dog  3 times per day,  but the Neuropothy is  still a bug bear,    a consequence of the treatments i am told,  i see the  haematologist every 4 months and get a bone strengthening   injection every  3 months for my hip       hope the treatments  keep going good for you,   only  advise i can share is   keep as active as you can for both physical and your mental health       Kevin 

  • Thanks for that Kevin and good to hear that you’re doing well.  Neuropathy sounds like a struggle though. 
    As I am 75 so SCT is not an option, especially as the newer treatments are working just as well as SCT.  I’m on Isa-VRD and unpleasant as side effects are, it is doing its job.

    Jo.