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Hi everyone, my name is Mel, I am a 64 year old woman and I am fairly newly diagnosed with MM, although I have been monitored for MGUS for 6 years, more or less. I think I have kappa light chain myeloma. I am waiting to start treatment - 4 cycles of chemo...
Hi everyone, I’m new to the group and wanted to introduce myself. I'm Marcus and I was diagnosed with Polycythaemia Vera when I was around 16–17 years old, back in 1989. Over those early years I had numerous treatments, including radioactive phosphorus...
Hi = I was diagnosed with Myeloma in Nov 25 and started chemo straight away. After 4 cycles I stopped chemo and prepared for Stem Cell Transplant. Recently had Stem cells harvested and now due to 1 week to have SCT. I just thought I would say hello and...
Has anyone had SVD chemo & if so how did you get on with it
I am due to start third line chemo. On my drug sheet I have been given OLANZAPINE anti sickness along with ONDANSETRON & CYCLIZINE also both anti sickness but the OLANZAPINE came with a 6 page information sheet which was very scary to read. Just wondering...
I was diagnosed in December 2025 with Myeloma currently had my 4th weekly cycle of chemotherapy I’m on RADAAR trial
I’m now SCT + 20. Released from hospital after 17 days and then re admitted to hospital 24 hrs later with an infection! One week later I was discharged and am now navigating the way back. from experience, how long does the extreme fatigue last and also...
hey all. i was diagnosed in October 2025 with Myeloma after they found a tumour on my spine. i am on DVTD in terms of treatment and im starting preparations for a stem cell transplant! i constantly get told that im very young to have myeloma and that...
I’m not sure if this should be in the ‘general' forum or not, but I at least know that nobody here will think it inappropriate or gloomy (as non-sufferers sometimes can). I am in excellent health at the moment (SCT 12 months ago, 66yo Male, good response...
I just feel drained and unwell. Emotionally all over the place. I was diagnosed on Saturday, came home Monday. I just feel adrift. I'm overwhelmed and can't process my diagnosis.
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