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I had a tumour removed from my spinal cord 7 weeks ago, I still can’t walk unaided, I was first diagnosed with NHL but now I have been told it’s myeloma, I am totally devastated I can not stop crying and thinking this is the end for me at 56. I have a...
Hello, I have joined a club I really did not want to be part of. I am 57 years old, and following what I thought was merely a pulled back muscle that was taking a while to heal turns out to be Myeloma. I am devastated to say the least. You hear...
Hi I've been having treatment for two months now and everything is going well but my Bones ache like I've been in a fight is this normal
Happy to join the group. I am an African with Multiple myeloma diagnosed 2yrs ago. Had chemotherapy & stem cell treatment at Oxford as a private patient. I did tolerate all my medications without much problem. I am in remission. Is there any support...
I am just about to start a week of Radiotherapy then chemo the next week which I am dreading any advice would be appreciated
Is an SCT considered to be the best and most appropriate course of treatment after 4-6 months, even if chemo is going well. An SCT seems to be quite an ordeal with the potential to set you back for quite some time, so can it be declined. Thanks
I would like to know what is the best treatments for both
Hi, I have just been diagnosed with Myeloma. It has destroyed some of my vertebrae and is very painful. Have been offered choice of three treatments and am choosing the VCD version. Anyone experienced this? Am frightened and emotional still.
I am concerned and worried , my monthly blood results have come back and for the second month in a row my kappa light chain numbers have gone up . I have had six rounds of VTD , which has been reduced in strength due to other related issues . I was due...
Hello - has anyone taken the chemo tablet revlimid to treat multiple myeloma?
