Kappa numbers going up

FormerMember
FormerMember
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I am concerned and worried , my monthly blood results have come back and for the second month in a row my kappa light chain numbers have gone up . I have had six rounds of VTD , which has been reduced in strength due to other related issues . I was due for stem cell harvesting at the end of this month , but have been told by consultant that this is now not going to happen until maybe October with the SCT in November or December . The delay is due to to the unit being fully booked . So I have got to have two more cycles of chemo . The consultant spook to me before the blood results came back ,so I could not talk to him about this .Has any body else had their light chain numbers increase while on treatment ? And has any body had eight rounds of chemo before SCT ? 

  • Hi Pifkin,

    I am really sorry to read about your post, I can imagine this must be a very worrying time for you at the moment. I think there can definitely be blips in blood results, but if this is a trend, I would definitely speak to your consultant again if you can to try to get their view on what the plan is. Is there a way they could increase the dosage of the treatment or swap for a different treatment in order to get your cells in the best position possible before SCT? I have come across lots of people on here over the years who have had to try lots of different treatments before they got to SCT, and I’m really hoping you’ll find a way forward soon that will get the results back down and not cause you any problems with other matters.

    All the best

    Greg