New member

Hi Thouldson,

I'm sorry we meet under these circumstances.

I'm 45 years old and was diagnosed with Myeloma in January 2021 following a routine blood test to investigate a minor pain in my side which cleared up within 2 weeks and was unrelated to Myeloma. 

I'd say it's normal to feel frightened, especially when you first learn you have Myeloma. You will go through lots of emotions and shed tears with your loved ones. 

It may not seem like it now but it will get easier as you move through the process and start to learn more about Myeloma. The treatments available are amazing and are extremely effective. I've had 4 months of pretty intense Chemotherapy which reduced my Myeloma levels to nearly zero from quite a high level. I'm currently waiting for a Stem Cell Transplant following the harvesting of my Stem Cells in August.

My advice to you is to ask your medical team for any literature they have which will be helpful to you and then read it. My medical team gave me leaflets and books without me asking for them. Don't Google anything as it's often out dated or related to other people. Remember that you are your own case and your medical team are the best people to answer questions about you. 

Most importantly, try and be strong and positive for the fight. 

Good luck and stay strong.

Paulo 

Hi Thouldson

Welcome to the club

Like Paulo S, I got diagnosed last year, 22 June, after complaining for back ache.  I joke I went into hospital with a back ache and came out with cancer.   

I've had 4 cycles of treatment and again like Paulo S my numbers have gone down to almost nothing from stupid high counts and am waiting for my SCT after being harvested in April.  Unfortunately, it's been postponed due to rising Covid numbers but I'm sure I'll get there eventually.  I keep being told it's no concern as I'm in good remission. 

At first, it was all a whirlwind but now I'm learning more about the condition via this website and Myeloma UK website too.  Don't believe all the horror stories you may hear, as everyone's journey in life is different.  Stay off Facebook Groups is my advice...

My specialist nurse is brilliant, hope you have been assigned one as a point of contact.  I don't have much faith in my consultant so I hope you have a good medical team round you.

It's easy for anyone to say be positive but we're here for you and have stood where you are.  I can promise, there is light at the end of that long dark tunnel, but it does get brighter.

Here for you.  Sending hugs

Marie xx