24 year old diagnosed with Myeloma

Hi.  Honeybeez      That is very young I am very sorry to read this but great you reached out.  “. Frustrating “.   I think you are being very polite!       I am makes 68  and in remission from.  M. M.  Having had stem cell transplant 2 years 2 months ago and living a good life    How is the back ?    Did you have some treatment for this first ?     I also had 4 cycles of DVTD   THEN S. C. HARVEST and after that the transplant.     You will get good honest support on this forum and we are all here to help you navigate it and what to expect and good advice from experience.      Yourself being so young will give this a good kicking.   Be independent and keep up as much normal activities that your body allows.     Don’t fight it   If you are fatigued?   Rest.   The new treatments are incredible .    Wish you the best on your journey.  Kevin.  A. K. A.  Vespa 

i’ve had 4 cycles of DVTD after my stem cell transplant ill have 2 more cycles, im still processing it all despite being so far into my treatment 

Understand. Yes I had two more cycles post. S. C. T   Then onto maintenance drugs  I am sure you have found great information on the MacMillan web site to help you prepare for the stem cell transplant and recovery.   And how low your immune system will become.    One of the toughest things for me and the wife was telling our kids!     Anything you would like to know please ask me and the forum   I am sure Thehighlander  will respond and he is truly an inspiration to us all.    Kevin 

Hi honeybeez  I see my friend Kevin Vespa  has mentioned my name…. ;)

I am Mike and I help out around our various Blood Cancer groups…… I am sorry you find yourself on the Myeloma rollercoaster but you will get some great help from the members in this group.

I personally don’t have Myeloma…… I was diagnosed way back in 1999 at 43 with a very rare (8 in a million) incurable but treatable type T-Cell Low-Grade Non Hodgkin’s Lymphoma……. eventually reaching Stage 4a in late 2013 when a second, also rare fast growing type of T-Cell High-Grade Non Hodgkin’s Lymphoma was presenting….. so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well……. more so as I have had 2 Allogenic (donor) Stem Cell Transplants in June 2014 then Oct 2015 (See my story)

You may find the Macmillan Support Line helpful ….. it is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332

You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups, the one I attend does have a few folks with Myeloma in it so worth checking.

Always around to help more or just to chat.

You’re younger and stronger than the rest of us on here. if you get the chance, go away from a few days,  break your routine before the stem cell transplant.