I’m not sure if this should be in the ‘general' forum or not, but I at least know that nobody here will think it inappropriate or gloomy (as non-sufferers sometimes can). I am in excellent health at the moment (SCT 12 months ago, 66yo Male, good response to treatment) but I am going to move house and would like advice if anyone can give any.
I am only going to move once, from the too-large house one mile from the town centre, which was left for my use when my late wife died (one year before my own diagnosis). I am going to move to a house in the town centre with three bedrooms ideally, close to the shops, station, doctors, river walk etc. I am not financially-challenged and can make adaptions if needed.
But to help me, it would be useful to know what physical and health problems are likely to come up whenever I get to end-stage myeloma, as I know I will eventually, in that house. I know that increasing bone fractures can be an issue, that infections can stack up, but are there any practical things I should look to include? Good Heating, Ease of access to the property (so maybe ruling out flats?). Are there things that you have noticed but I cannot yet know about?
Thanks very much for any ideas you can give.
I don't think that it is gloomy or inappropriate. Much as though I try to emphasise that it is possible to have a rewarding life with myeloma, no one is immortal, and realistically we all have or will have tough times.
Anyway, although I don't have issues yet, I have been doing some thinking on this. I think that you have covered most aspects
For myself, some green space visible from my home would be a must have. For me that is my garden: a river walk sounds nice as far as it goes, but that means getting out of the house, and there may be times when you may not be able or willing (maybe just because of bad weather) to do so.
When at my worst, I have enjoyed simply watching the local birds, squirrels etc in the garden. However, gardens do need maintaining... (hire a gardener from time to time?)
It is also possible that wheelchair access may be useful in times ahead. Basically, that means an entrance without steps (maybe a ramp instead) and a sufficiently wide door.
You suggest that ease of access may not be compatible with being in a flat. I think - on the contrary - that a ground floor flat could do the job.
Thanks Chicken,
You've reminded me that the emotional side (seeing interesting/beautiful things out of the windows) is also a consideration. The moving to the middle of town will also have an emotional benefit because I have plenty of friends here and if it's easier for them to drop in that would be good for me.
padjo
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