Hi

Hi it is indeed a lot to take in.    Are we talking multiple myeloma or a different blood cancer ?     I have. M. M.  Now 2 years post stem cell transplant.     Once the treatment starts you may feel like it’s in hand       The therapy is worth it.    Bi had 4 cycles of treatment taking 3/4 weeks with a gap in between each cycle      Then a stem cell harvest once numbers were low.   Then the transplant which none of it was painful at all.     Have you had.   M. R. I.  Or bone marrow biopsy to confirm diagnosis. ?      You are not alone.    I am sure other patients will respond.      It’s worth it !    You are worth it.    Kevin.    A. K. A. Vespa 

Thank-you, I'm so scared, it's like my mind won't accept the truth 

It is a lot to take in but you will get there

I was diagnosed Feb 2024 with m.m bolt out of the blue at present i am in remission after treatment it took me a long time to accept it also.

Thank-you 

Everyone is different. Some people want to read everything they can learn about it Me? I think I pretended it wasn’t happening most of the time. time will pass and you’ll start your treatment. The days will be getting sunnier.  It will be okay. 

Thank-you x

Hi Anniesdad  and welcome to this corner of the community. I was talking with your wife Anniemum in the New to Community section and it’s good that she has connected you in with this great group.

I am Mike and I help out around our various Blood Cancer groups. 

I don’t have Myeloma but for some context I was diagnosed way back in 1999 at 44 with a very rare (8 in a million) incurable but treatable type T-Cell Low-Grade Non Hodgkin’s Lymphoma……. eventually reaching Stage 4a in late 2013 when a second, also rare fast growing type of T-Cell High-Grade Non Hodgkin’s Lymphoma was presenting….. so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well.

Back in 1999 the then median survival from my first type of Lymphoma was set at 3-5 years on the information I was given.

Our 2 daughters were 14 and 18 back in 1999…….  but we went on to see our daughters graduate, get married, set up very successful businesses and provide us with 4 beautiful granddaughters…… this is an example as to how the treatment of blood cancers has developed over the years.

Thus group will be a safe place for you and your wife to get support from people who have lived experience of Myeloma

As always the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332

You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups, the one I attend does have a few folks with Myeloma in it so worth checking.

Always around to help more or just to chat.