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Hi , I am currently on the 3rd cycle of Dara VTD treatment and during the week developed chest pain and was taken into A& E . Discharged a few hours later with no cause found foir the chest pain which had subsided during the time in A& E .Found out later...
Hello, I’m new to the group after being diagnosed in June. I’m currently on my third cycle of DVTr and have my first appointment at the end of the month with the team at QE Birmingham to discuss my stem cell transplant. I’ve been lucky with my treatment...
Hi My mum has had multiple myeloma for 3 years this month and tried alot of chemotherapy, valcade got her into remission for 9 months, then had lenalidomide for a year after the pomalidomide made her really ill and daratumumab didn't work, so she's...
Hello to you all. Has anyone been diagnosed with a lower skull base Plasmacytoma ? I’m 53 and was diagnosed with one in May last year after coincidentally hurting my neck very badly (which still isn’t right). I had 25 round of Radiotheraphy which...
Hi All i joined this group a few weeks ago and I have responded to a couple of people but I am so disappointed that nobody has responded to me, I am awaiting my st harvest on or about January 9th I was with the consultant yesterday, I live alone my...
Hi all ,had a stemcell transplant a few weeks ago, not sure what happens next treatment wise. Appreciate anyone who could enlighten me. Many thanks in advance
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
I was diagnosed with Multiple Myeloma in March this year, I’ve undergone 16 weeks of chemotherapy, stem cells have been harvested now waiting for the stem cell transplant hopefully in the beginning of November. I’m suffering constant mid back pain, especially...
Hi, Just been told today that I have Myeloma and will need to start chemo. Don't know what to expect now
Hi. I am 47 and have just been diagnosed with multiple myeloma . I will be having chemo in a few weeks and then a stem cell transplant. A bit nervous so would love some advice, tips .
