Hello, I’m new to the group after being diagnosed in June.
I’m currently on my third cycle of DVTr and have my first appointment at the end of the month with the team at QE Birmingham to discuss my stem cell transplant.
I’ve been lucky with my treatment so far - not too many side effects, but the SCT terrifies me - not sure if it’s losing my hair, being in hospital for 3 weeks or how long it will take to recover (if I’ll recover).
so I just wanted to reach out to anyone who had been through this and ask for any advice really.
That’s hankyou
Hi GertieWooster and a warm welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Blood Cancer groups.
I don’t have Myeloma but I was diagnosed way back in 1999 with a rare, incurable but treatable type of Non Hodgkin’s Lymphoma Stage 4a so although my Blood Cancer ‘type’ is different I do appreciate the challenges of this journey rather well.
As part of my treatment journey I had two Allogenic (donor) Stem Cell Transplants (June 2014 then Oct 2015) so know this process very well. For me SCT turned the tide of a very poor prognosis into a completely new life. I am coming up to 7 years out from my second SCT and living the dream.
We Community actually has a dedicated Stem cell transplant group where people from different blood cancer types support each bother on the SCT journey.
Why not join the group and introduce yourself by putting up a post and we can talk more as well as this will open your search for information further.
