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Hello all, my Dad was just taken off chemo and has suddenly become out of breath, low white blood cells and low hemoglobin. In your travels have you come across this and could it be connected to stopping chemo? I'm just asking as I wait for answers from...
I'm here to learn, to share, to support.
Hi Everyone, I don't know where to start to be honest, My dad had his SCT in 2018, 2 weeks ago he was told that he would now be put on Pomalidomide, and to get his affairs in order as he may possibly have a year left, since then he has deteriorated...
How do you cope with the lack of uninterupted sleep, my thoughts are so confused when I wake and no reason for worry. Hot feet as if in a bowl of water don't cool down with a fan, i just get cold and fingers tingle like you've been handling snow
Hi there, My name is Laura and my husband has Myeloma.Currently he is recei ing chemo and the plan is for him to have a transplant early next year. He has just been extremely sick with sepsis- reveiwed for ITU but thank God didnt need to go in the...
Hi everyone. My wife was diagnosed with SMM last November and I am her full time carer. She’s been having blood tests every 3 months and they have been stable. Today she got a letter saying that her paraproteins is 10.2g/o her light chains is 140 and...
Hello I'm Neil , i had the heart breaking phone call to tell me about my mum having Myeloma cancer. She is still in hospital & any help would be grateful. I am at the beginning of our families journey & i havn't any idea what to do.
Hello all i have returned since my diagnosis in July, the doctor is doing more bloods has they are concerned due to my continus back and hip pain non stop for a whole 6 weeks that my cancer is now active. Is this true?
hi All, I wonder if anyone can describe the pain that’s talked about from myeloma please ? The reason I ask is that, I have been suffering with pain in my hip/groin for sometime now, and I have been diagnosed with peripheral neuropathy. i have pain...
Hi, I have recently been diagnosed with MGUS and would like to meet other people online to hear/learn about their experiences.
