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I was diagnosed with multiple myeloma in December 2022 and started receiving chemotherapy in February and have taken two circles and now on the third one.
Had my sct Nov 21 and relapse confirmed last week. Off meds now,had mri to determine why I have back and hip pain. Unsure about next step have been offered dvd regime or second sct so confused.
I was diagnosed nearly 3 years ago. Had loads of treatments, including stem cell. If you want to ask me anything about treatments, please contact me and I can give you some information on my experiences. Xxx
I have just spent a week having a days intense chemo followed by 9 GCFS injections preparing for my autoglas stem cell collection. The injections caused me to have severe spasms down my lower spine and pelvic area which radiated up my spine. These were...
Hello, I have recently been having numerous tests, scans, biopsy etc over the last few months that and it turns out I have a Plasmacytoma in my right ilium bone(pelvis).Still awaiting the last biopsy results that I had done on the left hip, if this is...
Hi all I was diagnosed with myeloma in December 2012. Had stem cell transplant but only lasted 12 months I've been on Revlimid now for 8 years with great success but starting to worry now about when it will stop working! It's really starting to...
Hi I was wondering if anyone else has had a tooth extraction before beginning zolerdrinc acid intravenously . My husband has had his first round if Dara/dvt and was waiting to start bisphosphonates for treatment of MM his consultant asked hospital maxillifacial...
Hi all ... I thought it would be helpful to start up a discussion on MGUS as there doesn't seem to be a regular spot for people with it to ask questions, although I know a few have been posted previously. I got diagnosed a month or so ago, after I broke...
Hi everyone, I’m Dee & I was diagnosed with multiple myeloma 16th March 2023. Since then I have had a variety of scans but I’m now waiting for the bone biopsy & full body MRI. I’ve been really positive about my diagnosis up until now but I’m getting stressed...
Stem Cell Transplant Good day everyone, my husband is going into hospital next week for a Stem Cell Transplant. He’s having this carried out at Blackpool Victoria hospital. I’m just wondering if anyone else on the forum has experience here. I’m wondering...
