Hello, I have recently been having numerous tests, scans, biopsy etc over the last few months that and it turns out I have a Plasmacytoma in my right ilium bone(pelvis).Still awaiting the last biopsy results that I had done on the left hip, if this is negative then my diagnosis remains the same, if not then its myeloma.
My treatment is 5 weeks intensive radiotherapy (plasmacytoma) or 1 week radiotherapy, followed by chemo if it's myeloma.
I am hoping to share experiences etc with people also going through a similar diagnosis. As I haven't had it fully confirmed yet, I haven't really had much support from the hospital. It has just been months of tests etc.
Thank you
Hi Bootsybate33 and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about the journey you are on.
I am Mike and I help out around our various Blood Cancer groups. I was diagnosed way back in 1999 with a rare (Incurable) but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013) so although my journey is rather different I do appreciate the challenges of this journey well.
Let’s look for the group members with any experience of this to pick up on your post. There are a number of active group members at the moment so why not click on the main ‘Myeloma Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
You can also do a site word search using the search tool 
near the top so why not put in Plasmacytoma into the tool, select 'Anywhere' and see what you can find.
Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.
For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups most are online at the moment.
Always around to help more or just to chat.
