Hello

Hello Dee

Im sorry about your diagnosis, I was the same as you with the thoughts I was imagining that my whole body inside was just full of cancer so I guess others have thought the same!! 
I was diagnosed in June 22 and started my treatment in August 22 I had my stem cell transplant on Feb 2nd so am currently recovering from that but good news I am cancer free!! I start my treatment again for 2 months in 10 days so not long. I had a fractured spine that’s how my diagnosis came about. I hope my timeline gives you an idea of how it works. I hope all goes well for you, keep in touch!

anita xx

Hi Dee I have sent you a response see below xc

Thanks for your response Anita, great to hear that you are now cancer free. It’s just the waiting I can’t stand but I guess I just need to be patient.

Did you lose your hair? I’m quite resigned to it I must say. I’ve been looking at wigs & head coverings. I’m also going to buy myself some really nice nightwear & lounge suits for while I’m in hospital. I’ve figured if I have nice things even wash bag, towels etc all matching it will help keep my spirits up. I’m quite a glamorous person who loves clothes, hair & make up so it’s just to make me feel more feminine without my hair. 

dee xx

Hi Dee

Yes I’ve lost my hair but it’s growing back already, I got a fab wig free from the NHS so get your team to refer you for one, I have fooled many people who tho my wig was my hair including a consultant!!!! 
Take lovely pyjamas etc in with you the only thing I would say is do not take your most favourite perfume etc in I did and I can’t bear the smell of it now, also my regular toothpaste I now can’t stand. You will come home having gone off things it’s strange! You keep yourself as glamorous as you can whilst you’re in there to keep your spirits up. You are right to take your own towels as the ones in the hospital are not good they’re quite rough. Which hospital will you be going to? Obviously I don’t know where you live. XxX 

I live near Oxford so I will be treated at Churchill hospital. 

I’ve just had a call to say my bone marrow biopsy will be next weds so I’m glad things are moving. 

Dee x

Excellent!! It’s not pleasant but soon over with, is someone going with you? I live in North Yorkshire btw x

Yes my friend is coming with me. I took her to all her chemo appts few years back so she wants to come with me. 

Dee x

Hi Dee,

I’ve just been reading your posts and wanted to put out a shout for the Churchill Hospital, they are amazing! It’s a great hospital and we were so pleased to have chosen them out of the three options we had. My husband’s specialist nurses were Sue and Kirsten, both amazing ladies who helped us both so much during his treatment with them. You’ll be in safe hands! My husband’s transplant was October 2021 and he is still in very good partial remission with no signs of an increase in the myeloma. Good luck and stay positive! Lots of hugs, Marion xx 

Thanks so much Marion. I am extremely fortunate living near Oxford, we do have excellent hospitals around here & the Churchill is a very good cancer hospital.

I’m happy to hear your husband is doing so well. Long may it continue.

Dee x