MGUS - help, advice and just a chat

Former Member
Former Member
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Hi all ... I thought it would be helpful to start up a discussion on MGUS as there doesn't seem to be a regular spot for people with it to ask questions, although I know a few have been posted previously. I got diagnosed a month or so ago, after I broke my collarbone completely out of the blue ... I was just running and it snapped in two! I'm only 49 and pretty healthy (well, I was!) so it was a shock. MRI, CT, blood test, bone biopsy in my hip and collarbone biopsy later and they thought it was multiple myeloma but it turns out that it's *just* MGUS and a crappy bone disease. So initially I was really pleased, but it's still a real shock, and I'm still worried.

Does anyone have any help/support/comments/thoughts on MGUS that they can share on here?

I've got my second appointment in a few weeks and assume it's just for routine blood tests.

Also - I've got a tattoo planned for a month's time (life's too short, just turning 50 etc etc) ... from what I can see, apart from the obvious infection risks (which don't really worry me) there are not distinct issues relating to MGUS. Anyone got any experience?