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I am 9 months on from my SCT and feeling good. I've had some of my childhood vaccinations and I've recently joined a gym and plan on swimming once a week to build up my strength. I am very anxious about going back to work. I have a meeting with occupational...
Hi everyone, I am new to forum but I would like to share my myeloma journey with you. I was diagnosed with multiple myeloma in October 2022 following months of severe rib pain and tiredness. I was fortunate that on first visit to my GP he recognised...
Hi I’m claiming PIP and was only awarded the low rate I had a lot of bone damage I’m having IV Chemo every 2 weeks which is totally draining and my mental health has gone through the roof can any one help me with wording on the form regarding my mental...
I am from Texas, USA. My wife passed away this past after a year and a half of dealing with this.
Chemo cycle 2 and life has totally fallen apart with so much more to come before stem cell - we have have to close our business and I’m struggling big time to deal with this on top of parents with dementia and end of life care mood swings and anxiety...
Hi everyone. Hope you're all OK. I'm Glenda. Looking to meet new friends in similar situations, either to meet up with or for a befriender to visit me at home as I'm quite lonely. I have a good sense of humour, love pets and travelling and am a good listener...
Hi All, I was sent to Aberdeen RI on the 13th for pre harvest checks and to introduce me to the equipment at the blood transfusion centre. I was getting my Cyclophosomide priming on the 20th and harvest was booked for Edinburgh RI on the 27th, my good...
Had Myeloma seven years but new drug regime now. Now on Pommelidimide for two weeks and fatigue has kicked in in a big way plus quite giddy. Anyone else the same and what recommendations pls. Thanks.
Hi having previously posted I can now say I'm looking forward to my 5th treatment DVDtomorrow. Over the past 2 weeks I have really suffered from fatigue to the point I was unable to get out of bed and then was so weak on my legs I couldn't do much. ...
Hi all, I've joined the forum today, but as I'm only ? recently diagnosed with asymptomatic myeloma, In not sure if it's too soon? As background, I'm 59, and have had recurring chest infections and pneumonia through 2023, was hospitalised for the pneumonia...
