Hi everyone, I am new to forum but I would like to share my myeloma journey with you.
I was diagnosed with multiple myeloma in October 2022 following months of severe rib pain and tiredness. I was fortunate that on first visit to my GP he recognised the signs, arranged blood tests and had diagnosis a week later. I began treatment on 29 November the day after my 62nd birthday which was 4 cycles of DVTD then the processes towards SCT in May 23. I was really poorly throughout the treatment but after transplant I did start to improve. My consultant suggested a further 2 cycles together with lenalidomide. As I was so unwell with the treatment it was agreed I would only take lenalidomide. I started this last August and once again started to feel very unwell. I started having terrible pain again which I didn’t have throughout the treatment. I also have had continuous cold symptoms and streaming nose, and awful tinnitus. Although the doseage has been reduced I am still suffering same symptoms. I have had an mri scan which has not shown any new lesions but my consultant is now considering radiotherapy to help pain.
I am so disappointed to still be feeling unwell and having terrible pain as I had so much hope I would be well after stem cell transplant. Hopefully better days ahead for us all.
