Hi All,
I was sent to Aberdeen RI on the 13th for pre harvest checks and to introduce me to the equipment at the blood transfusion centre. I was getting my Cyclophosomide priming on the 20th and harvest was booked for Edinburgh RI on the 27th, my good lady had booked a hotel for us for 4 days as edinburgh has no accommodation for patients or there carers.
Anyhow I had an appointment to go to my haematology on the 14th to see my consultant, he told us that my harvest and transplant were cancelled as my cancer was progressing instead of reducing after 4 cycles of RADAR Trial, very dissappointed to have wasted 5 months.
However onwards and upwards on Wednesday I started my second line of treatment which is DVD, my consultant said there would normally have been a fourth drug in the regime but they did not have the money for it, that comment did nor bode well. So I had my first course of treatment on Wednesday which included a dex infusion which meant i was up at 3am and had to take another 20 of those horrid DEx again in the morning.
I am hearing reasonably good feed back about DVD and was wondering what others think of it and if it has worked for them.
Thanks
Hi Alamo ….. oh the SCT rollercoaster is full of twists and turns but let’s look for this latest plan to follow through and get your SCT done.
CLAN is a great charity, I am originally from Fraserburgh so know some of the staff in their centres.
