Neutroponic sepsis

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Started first ever cycle of DVTD on 12/08, which I thought went well. Unfortunately I then picked up an infection, which they cannot source, and have been in hospital for the last 6 days. Still trying to get 48 hrs of normal temperatures before I can be released. Next two chemo dates delayed. 
At this moment in time it seems a long journey ahead of me and I know they’ll be lots more of these bumps to navigate. I just didn’t expect it to happen so soon.

  • Hi treacle sorry to hear about your infection and delay in treatment I have had  a lot of infections and been hospitalised  a few times with high temp and treatment delayed but you will get there it is just frustrating  that treatment is delayed  take care 

  • HI  Treacle57,    thats a step back when you had only just started the treatments,        our bodies are  at a low point and picking up infections  are the norm,  although not nice the hospitals are   good and    treating  with IV  antibiotics  and   monitoring blood tests and temperatures.        i am sure you will get it all back on track,        after a big bump  the smaller bumps will seem easier to  navigate,     some ways to go yet!   but     please trust me and the others on the Forum,   it is worth it,     i have just  walked back in hone after a  45 minute   dog walk,   a well earned cup of Tea,    i have learned to appreciaste the things around us more,  the berries on the trees as      Autumn approaches us,  the leaves falling,   my fellow dog walkers morning greetings,   i know  the dogs names,  but not the owners,  Slight smile

    i wish you a speedy recovery from the temporary set back,    get    back on track and drop us a note  when you are  feeling up beet,         often mentioned  that    people    reach out when times are tough so it seems that us the patients are  in the wars with health,    when   most of us  are leading good busy lives,    lives worth   living     

    Kevin    aka  Vespa 

  • Hi, I'm 2 years post stem cell transplant.  Sorry to hear you have an infection.  Yes it is an extremely rocky road and I've had numerous infections which have caused me to be hospitalised  but you will get stronger and be able to fight them off.  You are at the very beginning of your journey but trust us on this forum.  Some of us have  been where you are now so you can always count on us for help and advice.  Stay strong and positive.  Take care

  • Hi Treacle, so sorry you find yourself in this situation . I know it's so frustrating , you just want to get on with the treatnent and move on to the next stage   If you can concentrate on recovering from this infection. It's a bump in the road and seems like a knock back especially after diagnosis and the start of treatment.  You will get back on track . I am the worst for setting dates and goals .Was due to finish my last DDVD treatnent on Christmas Eve 2022 but like you had to get through delays in treatnent due to infections .It was a hard diversion to navigate but 2 and half years post transplant plant I'm so glad I did it . Stick with it rest up and take very good care. Sue xx

    Cakie

  • Thank you. It just seems like it will never start, let alone end! It’ll be fine. Just having a down day today

  • You are doing great Thumbsupa d you are allowed a down day x better to talk about it than lock it all away xx

    Cakie

  • Thank you. I know it’s going to be like this and I have to be patient. I just didn’t want to be an “inpatient “. I appreciate your support 

  • Soon you’ll be home again.  write a list of three things you want to do when you get home. my treatment was delayed because my bilirubin levels went through the ceiling but I’m back on track now and you will be very soon. But like someone else said there’s no harm in being sad about it today. 

  • Thank you. Just having a wobble today. I’m much better than I was, so there’s always a positive.

    I appreciate your support x

  • You’re very inspiring Kevin. I know I’ll be fine, just needed to let it out with people who truly understand. Thank you

    Teresa