Started first ever cycle of DVTD on 12/08, which I thought went well. Unfortunately I then picked up an infection, which they cannot source, and have been in hospital for the last 6 days. Still trying to get 48 hrs of normal temperatures before I can be released. Next two chemo dates delayed.
At this moment in time it seems a long journey ahead of me and I know they’ll be lots more of these bumps to navigate. I just didn’t expect it to happen so soon.
HI Treacle57, thats a step back when you had only just started the treatments, our bodies are at a low point and picking up infections are the norm, although not nice the hospitals are good and treating with IV antibiotics and monitoring blood tests and temperatures. i am sure you will get it all back on track, after a big bump the smaller bumps will seem easier to navigate, some ways to go yet! but please trust me and the others on the Forum, it is worth it, i have just walked back in hone after a 45 minute dog walk, a well earned cup of Tea, i have learned to appreciaste the things around us more, the berries on the trees as Autumn approaches us, the leaves falling, my fellow dog walkers morning greetings, i know the dogs names, but not the owners,
i wish you a speedy recovery from the temporary set back, get back on track and drop us a note when you are feeling up beet, Highlander often mentioned that people reach out when times are tough so it seems that us the patients are in the wars with health, when most of us are leading good busy lives, lives worth living
Kevin aka Vespa
Hi, I'm 2 years post stem cell transplant. Sorry to hear you have an infection. Yes it is an extremely rocky road and I've had numerous infections which have caused me to be hospitalised but you will get stronger and be able to fight them off. You are at the very beginning of your journey but trust us on this forum. Some of us have been where you are now so you can always count on us for help and advice. Stay strong and positive. Take care
Hi Treacle, so sorry you find yourself in this situation . I know it's so frustrating , you just want to get on with the treatnent and move on to the next stage If you can concentrate on recovering from this infection. It's a bump in the road and seems like a knock back especially after diagnosis and the start of treatment. You will get back on track . I am the worst for setting dates and goals .Was due to finish my last DDVD treatnent on Christmas Eve 2022 but like you had to get through delays in treatnent due to infections .It was a hard diversion to navigate but 2 and half years post transplant plant I'm so glad I did it . Stick with it rest up and take very good care. Sue xx
Cakie
Soon you’ll be home again. write a list of three things you want to do when you get home. my treatment was delayed because my bilirubin levels went through the ceiling but I’m back on track now and you will be very soon. But like someone else said there’s no harm in being sad about it today.
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