I had my appointment today with the consultant, he said my blood protein level was 26 down from 29 last time but I forgot to ask him at what protein level do they consider starting treatment, I have no symptoms except for SFN but have had that for over 25 years. Anyone know what is too high for the protein level, both my wife & I have asymptomatic myeloma , her levels were 24 last visit
Hi JenksB. Are you referring to your paraprotein level? I too have asymptomatic myeloma, my paraprotein count was 15 when I was first diagnosed 4 years ago. It is now down to 8. My consultant has told me that every one is different, so there’s no golden rule as to when you should start treatment. It depends on other factors too. For example, if you have kidney problems, constant infections or bony pain. Also, they take into consideration the rest of your blood counts too. It’s all very complicated, I feel we all need to go to medical school to learn all the complexities of this condition! I have been taking curcumin for three years and am convinced that has lowered my paraprotein level, and is keeping me from having to start treatment. Hope this helps!
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