Hi I am 54 years old, female, about to start week 4 of DRD chemo. Nausea kicked in a week ago and it’s been a grim week -mouth feels ‘burned’ tastebuds completely changed. Feel as if all the little crutches -like morning coffee/tea, yoga, running are...
Hi everyone, my name is Mel, I am a 64 year old woman and I am fairly newly diagnosed with MM, although I have been monitored for MGUS for 6 years, more or less. I think I have kappa light chain myeloma. I am waiting to start treatment - 4 cycles of chemo...
Hi everyone, I’m new to the group and wanted to introduce myself. I'm Marcus and I was diagnosed with Polycythaemia Vera when I was around 16–17 years old, back in 1989. Over those early years I had numerous treatments, including radioactive phosphorus...
Hi = I was diagnosed with Myeloma in Nov 25 and started chemo straight away. After 4 cycles I stopped chemo and prepared for Stem Cell Transplant. Recently had Stem cells harvested and now due to 1 week to have SCT. I just thought I would say hello and...
I am due to start third line chemo. On my drug sheet I have been given OLANZAPINE anti sickness along with ONDANSETRON & CYCLIZINE also both anti sickness but the OLANZAPINE came with a 6 page information sheet which was very scary to read. Just wondering...
I was diagnosed in December 2025 with Myeloma currently had my 4th weekly cycle of chemotherapy I’m on RADAAR trial
hey all. i was diagnosed in October 2025 with Myeloma after they found a tumour on my spine. i am on DVTD in terms of treatment and im starting preparations for a stem cell transplant! i constantly get told that im very young to have myeloma and that...
I just feel drained and unwell. Emotionally all over the place. I was diagnosed on Saturday, came home Monday. I just feel adrift. I'm overwhelmed and can't process my diagnosis.
Newly diagnosed on Friday 13th. 65 year old female. I feel so scared, knots of cold fear in my gut. Have taken to my bed to hide away. Awaiting bone marrow biopsy Monday 23rd. I am not mentally strong enough, already struggle with depression....
Hi I am new to the group and I could really do with some advice on pain relief and where do we go for help. My dad was diagnosed with multiple myeloma last June, he is currently on a regime of BVD. He is suffering from horrible debilitating leg cramps...
