Say Hello

Hello Whiskers and welcome to the Forum. 

I am on a different treatment from yours, but can relate to change in taste buds and nausea.  Nausea really is the pits!  You just moan away; nobody here will criticise you for that  

The first anti-nausea pills didn't work for me but, the second ones did.  I Imagine that, like any medication, things do not work in the same way for everyone. Hopefully your team can prescribe an alternative which does work for you. 

Fighting this cancer is a long, uphill climb and I’d be lying if I said I’d never considered giving up.  I’m further along my journey than you ( 5 months and counting) but things are somewhat easier now.  Each time I see an improved blood test result, it reminds me that my treatment is working. 

It probably doesn’t feel like it right now but, one day you WILL look back and see how far you’ve come. 

Hang in there and know we are all rooting for you. 

Hi Whiskers,

Please moan away! That is one of the many purposes of this forum.

I had nausea much later on but it didn't last. One possible tip: I found that dairy (especially yoghurt and ice cream*) were OK despite the nausea generally. I have heard one or two other people say the same thing.

*I don't even like ice cream normally!

Hi  Whiskers,   it is tough,    and nausea  is awful, if like me,  you like your food!    loss of appetite and  fatigue,   go with this treatment,  but the   results do become worth it,   i am male and 69,   2.5 years post stem cell transplant,  and  do please come to the forum  for  a moan,    a line of support,  we have all been through it.      Cycle 4 of the treatments  means you have come a long way already,    then will come Stem cell harvest and transplant.

it is worth it,         dont fight the fatigue,   listen to your body and rest sleep when you can,   best wishes Kevin AKA Vespa 

Thank you so much for the wise words and welcome. I will hang on to the blood results! All the best 

Hi Whiskers,

Sorry, I shouldn't rush my responses!

I should add that, although your treatment only started a few weeks ago, you, it doesn't go on forever. You will get through it and into remission.

It's a slog, but then you can get into remission. I went through it: now in remission for about 3 years.

That’s great to know. Thank you for your words of encouragement! Long may your remission continue!