Good afternoon to all just wanted to get opinions on my fatigue I’m exhausted mentally and physically I was diagnosed with smouldering myeloma in January 2023 I’m not on any meds but I am monitored every three months with blood tests and a talk...
Hi all. A while since i have been on here. Its been a roller coaster this last 7 months. Fractured my back last November but my GP said it was a pulled muscle. Ended up in AnE in January and was admitted and started on Radar trial and Chemo. Unfortunately...
Hi My husband has just been diagnosed with myeloma, I know there is a long road ahead as he needs chemo and stem cell transplant, he has fractures in his spine also. He has a pet scan on monday and another heart scan tomorrow cos there was something...
Good morning everyone I lost height due to the MM and after diagnosis was referred to a back specialist, who I saw as well as starting the Chemotherapy. Followed by an SCT and now in Remission and on Lenalidomide. The back specialist said no further...
Hi everyone I was diagnosed with MM in May 2025. I have had Chemotherapy, SCT in early February, further Chemotherapy and I am now in Remission and started on the Lenalidomide (Day 14). I seem to be in a constant ‘panic’ about everything, especially...
Hi - I'm new here. I was diagnosed with myeloma in late January and I'm still getting over the shock. I'm in my 70s but up until late last year I was running regularly and playing badminton. I'm now having to get used to very limited activity as I'm tired...
Due to start above chemo. Has anyone gone through this & any advice. Thanks in advance
Hi, I am 6 months on from SCT. I am in the radar trial and started my maintenance drug 2.5 months ago which is isatuximab. I wondered if anyone else is on this as I feel more tired, fuzzy headed and generally more unwell since starting it.
Hi I am new to the group and am full time carer for my husband whom is 75. My husband is on cycle 6 of his treatment and is in remission. Can any of you recommend a travel insurance group that’s reasonable please!
Hi, I was diagnosed with myeloma 3 weeks ago and started my 4 cycle of treatment. I’m 52 years old. It’s been tough, I have good days and bad days. Anyone doing Dara VTD at the moment ?
