i am a 66-year-old male. I was under a doctor's care for MGUS for six years, monitoring my M protein spike numbers. The numbers met the treatment threshold for multiple myeloma in September 2025. I started treatment in November 2025. The plan for treatment...
Haven’t logged in for a while as been adjusting to my weekly treatment days and abundance of pills. Feel I’ve now experienced most of the side effects, several at a time, but fortunately not all at once. I’m finding restless legs hard to deal with as...
Hello everyone. I’m new to this group. I am grateful for any advice. I am newly diagnosed MGUS with paraprotein 3G/l. I had my appt about this last Friday and they are concerned about some back pain I have so are sending me for an MRI next week. I’m having...
I am new here. My mum was diagnosed with myeloma in November and she has rare pulmonary and heart involvement which has reduced treatment options. She started treatment but it is very overwhelming how much support family has to ensure we get her to her...
Hi all, I’m new to this group. 18-24 months ago I was diagnosed with MGUS. Today I have severe peripheral neuropathy and both arms and hands feel like they are failing due to the pain and strange sensations. I have suffered with Barrett’s and have had...
Hi all. First posted on here 2 years ago when I got my Smouldeing Myeloma diagnosis. After hurting my back and been fobbed off by my GP for a month i finally went to AnE. 2 fractures, multiple legions and vertebrae damage. Not "just a pulled muscle...
Feeling overwhelmed with what's to be my future situation. Can't get my head around the thought of lengthy treatments which cause long-term side effects for an unknown amount of time in remission then start all over again? How much quality of life is...
Hi everyone i hope your all doing well , i was diagnosed in Oct and have finished 3 cycles of treatment . The tiredness and lack of taste are a bug bear but the treatment is going the right way so thats good .
As e 81 year old this is new to me It is good to see that you are not alone and that there are many others going through the same journey The biggest problem I have is the lack of energy a few days after treatment
Hi, I'm Stu and I was recently diagnosed with Multiple Myeloma. I am or was a platelet donor, I donated in January with no problem. In February I had a phone call from the blood donor centre saying my red blood cell count was a bit low, not low enough...
