Hello there. Phew what a task to find where I wanted to say Hi. Here now though. I was diagnosed in July 2023 with PV and ET. I have a mutated Jack2 gene. Never would i have thought I was writing something like this. To be honest I was glad of the...
My mum was diagnosed with MM around 18 months ago. She initially responded well to first chemo treatment which was for around 6 month, however late last year she had her relapse with second round of chemo started. However the myeloma in the 2nd time round...
Recently on a routine blood test it was revealed that I have “mildly raised” Kappa light chains and a Kappa/Lampda ratio of 2.1. I am a 70 yr old male and tests were done as my kidney function had dropped but that seems to have improved. I have been told...
Hi, I'm on my 3rd cycle of treatment, and I have started experiencing numbness in my legs, really bad, if I sit they are numb, walking whatever they are like almost constantly numb, my skin feels tight, like when I try to bend my knees it feels tight...
Hi I was diagnosed with multiple myeloma in February this year and finished my chemo treatment in June. I have just had my stem cell harvest and am now awaiting a date for my transplant. During chemo I only had slight tingling in my feet but since finishing...
Hello 3weeks ago my mum was told her blood count from the week before was 81 (8.1) so I knew it was going to of been even lower as it was a week later so the next Wednesday had bloods done again and was 62, two days later had 2 litres of blood repeated...
Hi Can you claim for a refund on dental treatment as MM is classed as terminal due to no cure. Many months ago I was informed by my hospital I jeered a check up prior to my Zometa infusion. My check up revealed I needed attention to four teeth but...
Hi all, I have always thought of myself as a good eater with good mixtures of foods, good and yes bad. Wondering if anyone would have any advise on foods for this horrid disease? Thank you.
Hi everyone . I had a stem cell transplant first week in April . Happy to say I'm recovering really well at home . I have lost most of my hair as I was expecting too but so far I see no sign of any new growth . I was wondering how long other people...
Hi everyone, I'm Eliza from the Community team at Macmillan. I'm just getting in touch to share Mary's story. Mary has shared her experience of a myeloma diagnosis, having a stem cell transplant and chemotherapy on Community News. You can read Mary...
