Hello there. Phew what a task to find where I wanted to say Hi.
Here now though.
I was diagnosed in July 2023 with PV and ET. I have a mutated Jack2 gene. Never would i have thought I was writing something like this.
To be honest I was glad of the diagnosis as it explained why I was feeling the way I was. I had put most of it down to getting older. I am soon to turn 70.
The consultant at the hospital has been great. She explained everything to me and what the treatment was going to be. I am on oral chemotherapy daily for the foreseeable future and having my bloods tested on a monthly basis.
I have begun attending a Haematology group at my local Maggie's centre. First visit was yesterday.
I am quite the optimist and try to deal with everything in a positive way. However I am struggling with fatigue and brain fog.
Looking forward to communicating on here.
Beth
Hi Beth @ and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about your diagnosis.
I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a very rare (also incurable) but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013) so although my Blood Cancer ‘type’ is rather different I do appreciate the challenges of living with an incurable blood cancer.
There are a few active members at the moment so let’s look for them to pick up on your post. Do click on the main ‘Myeloma Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
Good to hear that you have found your local Maggie's Centre helpful, my local centre is amazing.
Always around to help more or just to chat.
