Mum's Multiple Myeloma

I am so sorry that you and your mum are suffering this way. My mum was diagnosed three years ago and I've experienced similar feelings to you.  The thing that has helped me is taking one day at a time. You have the strength to get through just one day. Also, it's OK to cry. Be kind to yourself.  You have done so well already, supporting your mum .  

Thank you for your response and kind words.  You are right taking one day at a time rather than trying to think ahead does make sense.  Hard to sometimes engage the thought process that way 

Hi Anon13 and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about your mum’s diagnosis and the journey you are all on.

I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a very rare (also incurable) but treatable type of Non Hodgkin’s Lymphoma (Stage 4 in late 2013) so although my Blood Cancer ‘type’ is rather different I do appreciate some of the challenges of this journey rather well.

It’s good that G1ddyaunt has picked up on your post as talking with others who are navigating the practical and emotional challenges of supporting family will be of great to you. You may also benefit from joining our general Carers only and Supporting someone with incurable cancer support groups where you will connect with others navigating the same support challenges.

Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat where you will find one of team there to help you out. We also have our Ask an Expert section but do allow a few working days for a reply.

For good information do check out Myeloma UK who produce very good information and run various support platforms and they also have a Support Line on 0800 980 3332

You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing.

Always around to help more or just to chat.

I’m so sorry your mum isn’t responding to this round of treatment .  My husband was only diagnosed in February this year and so far so good but I can feel your pain it’s so hard to see the people we love struggle but as the other posts have said take one day at a time don’t be afraid to ask for help we can’t be strong and smile all the time and it’s important to understand all the emotions your feeling are normal and there are people out there who you can talk to and who understand what your feeling .  Your mum is a very lucky lady to have a daughter who obviously loves her very much be kind to yourself xx

Thank you for your response and kind words.  Wish your husband the all the best with his treatment

Thank you for your reply and kind words

Hi Anon

I'm hoping things have settled a little as I appreciate this post is a few months old. You're in the same position as my two daughters and it's awful knowing the pain your going through. My youngest is getting counseling now to help her process her emotions as am I. I think for lots of us the emotional aspect of the diagnosis is as hard, if not harder to cope with than the physical side and that goes for our loved ones too. There are carers centers around the county that can help support you as well as Macmillan so it might be worth contacting them to see what they can offer. 

 We're here for you so please continue reaching out

Take care 

Gill

I just got my over the phone consultation I have to start treatment and going into clinical trial to go up to hospital 3weeks yesterday and see them and also another bone marrow test she said I can’t put it off now sending out information about the trial to me to read 

Hi I'm thinking of you and just prayed for you. Don't worry.  You ll be fine. I started my myeloma treatment 2 and a half years ago. I started off with 4 months of chemo followed by 4 months of remission then did 18 months chemo (I stopped after 12 months) and have been in remission for over a year.  The worst side effects were tiredness and dizziness.  I never felt sick. Just face it head on and trust God and you will be fine x