Numbness

Hi Vextal,

I am really sorry to read what you are experiencing at the moment. This is not something I have experienced so I am not sure I can be of much help unfortunately. I would definitely mention anything unusual like this to your medical team and get their advice. The chances are that they will have seen this before and will know what to do. 

Here’s hoping you can get a quick fix for whatever is causing it.

Greg

Thank you Greg appreciated you taking the time to answer.  I'm definitely going to raise the issues with my nurse next week. 

Keep safe

Peace and love

Sonia

Hi Vextal,

I have been recently been diagnosed with Myeloma, & have had similar symptoms to those you are describing , in fact that was how I found I had Myeloma, I was originally being tested for peripheral neuropathy but all the tests came back negative, My consultant ordered a series off blood tests which showed some abnormalities so referred me to Haematology & after scans blood tests & biopsy had the diagnosis, I describe it like wearing a very tight  wetsuit (used to dive) around my lower legs really tigh around the front of the ankles in my case worde when getting upm I also get a lot of cramping in my feet especialy again in bed, I hve not yet started with any treatment, waiting for the consultant to speak t me this friday when the latest bone scan results are in. Hope you stay well and I agree it is a very difficult feeling to explain to others.

you are not alone

Brian

Thank you Brian, you are right that's the feeling a tight wetsuit. I raised the issue with my nurse last week who said not to worry and that the meds can play havoc with system in general. She also told me not to worry about weight gain as when I get my stem cell transplant I would most definitely be losing it. I really appreciate your time and kindness, it is nice to know we are not alone  in this journey. Hope your treatment starts soon and all goes well, keeps us updated. 

Sonia (Aka Vextal)

Reference weight, I have been told I am per-diabetic and should lose weight but with SFSN causing foot pain and leg cramps it’s is very difficult to exercise & the problem is the people from the pre-diabetic clinic don’t seem to understand the problems, Also being 75 doesn’t help

Also  I meant to say I hope your treatment is going well if you have started it, I am not on treatments yet just 3 monthly blood tests, hope all is well with you

Hi. Sorry to hear about your numb legs. I started to get numb legs and feet on my 3rd cycle too. I can be debilitating and worrying. mine did eventually slowly ease off and get better but it's taken about 8 months to get to normal. Hold on in there!!