Hi to all Vespa i am now 17-18 months post Stem cell transplant, after 2 more cycles of DVTD i went onto Lenolidamide, after 3 cycles and a bad skin reaction, itch rash, the dose w as reduced from 10 mg to 5 mg, this helped, but became intolerable again...
I found myself back on this forum after a decade since my dad was first diagnosed with multiple myeloma. I saw how many people are posting about being newly diagnosed and the fear and uncertainty. This disease is tricky and there is a spectrum of responses...
My husband has been in good remission a year after his first lot of chemo and then stem cell transplant and is on lenalidamide maintenance treatment. He's been having his childhood vaccines, several of which made him feel quite poorly. Over this time...
Hi All i relapsed 2yrs after my 2nd Stem Cell Transplant I have high risk Multiple Myeloma I was offered to go on a clinical trial it is a phase1 trial study. I started on 27th May it is a immunotherapy drug that will target 3 parts of the myeloma it...
Hi everyone, just wondered if any of you can help me. I have MM, had a SCT and been 18 months in remission however I have terrible neuropathy in my feet and lower legs which I think I cope ok with. That's is the only side effect I have had thru all my...
Hi all,not posted for quite a while. I was told in early September that my myeloma as relapsed and I would have to start treatment again,so after some discussion with my consultant we decided on D.V.D Treatment was the best way forward for me.I have...
Hello My mother is 82 and had smouldering myeloma for 5 years which has now developed and she has been offered DRD. I am desperate for her to consider it but she’s frightened of the side effects. It’s very hard to get a sense of the side effects and...
Hi everyone, I don't know if anyone can help me but I've been in remission, after my stem cell transplant, for 18 months and have been taking 10 mg Lenolidomide all that time. I have terrible neuropathy in my feet and lower legs and am used to it now...
Hi there, My GP has run an SPEP recently on me and the result was total globulin 34 g/l and IgA 367 mg/dl. My ESR is also high at 22. Creatinine is 90umol which again I've read is on the higher end of normal. I have read these fall within normal range...
So over the last few months my light chains have been creeping up & this week I was told by my Dr I have relapsed. I have been in remission 20 months I was very stunned & upset although I knew I would relapse. My Dr said there was a trial drug that would...
