Hi everyone, I am a 45-yo male, diagnosed in October. Currently on quadruplet chemotherapy regimen. Planned stem cell transplant in March. On first diagnosis, imaging revealed that I had a large soft tissue (malignant cells outgrowing from bones)...
Hi on my first cycle of elranatamab for multiple myloma really bad lover back and stomach pain hopefully settles down
Hi everyone, I am a 45 year-old male. Diagnosed with myeloma in September 2025. Receiving Dara-VRd treatment in Scotland. I have an autologous stem cell transplant planned for February (harvesting) and March (transplant) 2026. The medical team has...
Hi, I'm not new to MacMillan, I had breast cancer last year, but I'm new to the myeloma forum. Around August/September last year my hubby started with frothy urine. I was in the middle of my treatment so he didn't say anything. Also has protein, eventually...
Hi I've just realised that I've posted my recent diagnosis in a reply to myself on the Smouldering Myeloma forum earlier this year! Unsurprising as I don't know whether I'm coming or going at the moment. Apologies for the duplication. Having been...
Hello to all! I am 75 with newly diagnosed Myeloma after 4 years of smouldering monitoring. It is a lambda free chain myeloma. I am not transplant eligible as per my age. I was given options and thought the ISA VRd was the best although always concerned...
Hi everyone , l wanted to ask if anybody had experience of multiple myeloma coming back & how many years it took to relapse , don't get me wrong l am very positive person & believe in positive thinking but do wonder when this might return & the...
I have smouldering myeloma. Would anyone share what symptoms begin to present themselves, from experience?
My mum has recently had a stem cell transplant. We have been so focussed on getting to this point that we haven’t thought about life going forward. She is now two weeks post transplant and I’m scared for the future. Can anyone tell me their experience...
Hello. I had a stem cell transplant in April and I am now being offered either the standard maintenance drug Lenalidomide or a trial one called Iberdomide. Does anyone have an opinion which they think is preferable? Many thanks. Paul
