News from consultant

Hi lgrgdg90, I think we get used to everything that they they throw at us. I remember when starting on Pembrolizumab I read that people were on it for life, not knowing how long life would be. I was so pleased to be able to stop mine after a year, and disappointed but relieved to go back onto it when I have had a recurrence. You are so right one more year on treatment can be looked at as not as good as being off treatment and less hospital visits or be looked at as great, more security, and one more year when at one time perhaps that year was one we were not expecting to be here. 

I remember a friend with cancer (who is no longer with us) looking at stable being good, when I felt stable was disappointing wanting further reductions. Looking at things another way though if we feel no worse physically in ourselves when not a complete responder any amount left is perhaps nothing to be disappointed about and we can celebrate those 3 good things a day or more we hope. 

Yes you are right. Now I know the situation I will continue to try to make the most of everyday. My husband and I try to find things to do eg walking ,visiting local towns and villages ,walking along the coast and going to garden centres.

i have just been to Ludlow for 3 nights but on second day overdid the walking ( 9 miles ) and it made my leg swell with having lymphodema so will be more aware in the future my limitations. I keep repeating how lucky we are to have these treatments. I hope you are well yourself.