I’ve just been told that my second line treatment of Nivolumab has not worked at all. I have an appointment in two weeks to discuss options. I think it might be LEV/EVO combo. Does anyone else have info about this treatment. I’m just looking for some...
Hi everyone Had my operation on the 14th March 2022, I had a partial nephrectomy, I still have pain, and my head is all over the place. Feel like I am not coping with it all. Has anyone else just felt lost after, their diagnosis and operation. Even...
Hi all, I have sore blisters on my feet from my drug Cabozantinib. It’s making it hard to walk. Anyone got any suggestions to alleviate aside from good shoes? x
Hello, I am probably going to be having a kidney biopsy sometime soon. I have read that I have to lie on my back for 4 hours afterwards. I have breathing issues and can't breathe properly lying on my back unless I am propped up. Do you think I won...
Dear All, just to say a quick "Thank You" to Mumm for her frequent postings - my wife Val is on the same journey as Mumm, so her experiences have helped immensely. Val was diagnosed last March (22) but didn't start her treatment until August. Naturally...
Evening everyone, I'm six weeks post op after a right radical nephrectomy. I've been healing well so far until the last couple of days. In the past 48 hours I've had several excruciating stabbing pains in my right side, I'm due to follow up with my consultant...
So today I have submitted a complaint to my hospital. I was diagnosed with a tumor on my kidney in November 2021, in 13 months I have seen a consultant once. I have had 2 CT scans. I had a ultrasound in November because of radiation. It's been 10 weeks...
Hi all, I had a nephrouterectomy (kidney,ureter,bladder cuff removed), in October due to cancer in my ureter surgery went well but I had a leak in my bladder. I've been catherised since and it doesnt seem to be mending. Has anyone else experienced this...
is there anyone out there who has been diagnosed with cystic renal cell carcinoma? I am struggling to find any info for this and have just been diagnosed at my post op follow up. thank you
Just hope that everybody has some good news in 2023 Take care of yourselves Love Betty
