is there anyone out there who has been diagnosed with cystic renal cell carcinoma? I am struggling to find any info for this and have just been diagnosed at my post op follow up.
Hi Kristine, sorry you find yourself here and it must be tricky having a rare diagnosis too. You've probably done this already, but have you tried the search functionality in this site for "cystic renal cell" perhaps? Saying that, it doesn't seem to return much.
Have you found the kidney cancer uk website? They have nurse advisors on there who arrange regional coffee meetings on an internet meet-up site. www [dot] kcuk [dot] org [dot] uk.
I hope you are recovering OK after your op. Good luck.
