Hello all! I’m a year out from an auto sct and 4 months from Brentuximab maintenance. Been having upper arm pain on the left side when I extend my arms but not at rest. Hospital did not seem worried and I see my oncologist in a few weeks. Anyone else with such muscle or nerve pains after auto and Brent?
Hi , I am just dropping in past from our dedicated Stem cell transplant group.
I was treated for NHL and have not had Brent but after having two Allo (donor) SCTs, even coming up to 5 years post treatment I still am dealing with aches, pains especially nerve pain as I had a lot of nerve damage where my growth was. SCT does put your body through a lot but if your team are not that concerned then that us good news but you just keep monitoring everything.
I would also suggest, based on my recovery, the more I did the more pains I developed. My great SCN said “no pain no gain when recovering from SCT”
You may find this ongoing discussion helpful Life after a SCT - A Survivor's Guide as we have tried to collect our post treatment stories.
All the very best.
Mike
