Hello all,
My daughter had her last BEACOPP in May and is only just starting to find some kind of normal. Not that life can ever be normal, but she has bought a car, her hair is growing back now it's gone from completely bald to a number 5.
At her last follow-up with the consultant she's been referred to ortho due to the pain in her knees and also to the breast clinic after finding a new lump, which the Dr seems to think may be a cyst.
The reason for me coming on here again is to ask whether anyone has experienced a skin break out. When she was younger, she did have acne and was treated with a now banned drug, but in the last 10 days or so she's had red spots on her cheeks and chest. They aren't like regular spots with a head but look red and angry and now that she is no longer under the cancer care has anyone any helpful suggestions on the best treatment? We want to avoid the GP because not only are they useless but she doesn't want to go due to the amount of time it took them to refer her in the first place and by the time they did, she was stage 4.
As always, grateful for any help, thanks
Hi again BobbieRosie and good to hear that your daughter has made good progress and starting to find her new normal.
The post treatment world can throw up some curved balls…. and skin issues can often happen.
One of my 2 types of T-Cell Non Hodgkin’s Lymphomas was a rare skin NHL and for the first 15 years (1999 to 2014) I had regular Dermatology appointments having 2-3 skin treatments per week for about 15-20 weeks every year.
So I spent many hours sitting in the Dermatology waiting room talking with other patients and it was amazing how many people who had had chemotherapy were there due to post treatment skin issues…… including folks who were treated for HL.
Has talked with her local pharmacy, Pharmacists can prescribe under the small ailments rules.
But if she does not find improvement….. it can then be challenging to identify some skin issues and the experts in this area is Detmatology but this would required a referral……. and the main way for this to be done is through a GP
Many thanks, off to the pharmacist then - I think Hell will freeze over before she steps foot in our GP surgery!
If this is the case she needs to look for another surgery…….
The post treatment life will throw up issues plus normal ‘life’ issues so she does need to be registered with a GP surgery……
There us a point when her primary care will be returned to her GP and her first call will not be the Heamatology department.
I had no infections during all my treatments but about 10 months after my last treatment……. going into my first winter post treatment I had a lot of infections so good access to a GP was essential
Hi BobbieRosie I guess you still have access to a Clinical Nurse Specialist? I have their email and whenever I had any concerns (covid vaccine, a rash I had on my chest ~6/7 months after chemo, having phlegms for months after catching a cold...) I contacted them directly. If they can't help you they will say so, but I would go directly to them if you can. Your daughter is still under Hematology for 2 years right?
I had one my 3/4-montly reviews a couple of days ago and I had a question around fertility and IVF and the consultant told me to drop an email to the CNS so they can help with any questions.
I am always a bit reluctant contacting the team but end of the day after going through this treatment you are under their care for 2 years. I don't like to say this but 'it is their job' and if not they can refer or consult with a Dermatologist even without going trhough the GP (I think!).
Thanks for this because we weren't sure whether to get in touch with them or not. She has an appointment next week at the breast clinic and is already having huge anxiety about going. Having been there myself only 2 months ago, I have reassured her how lovely the staff were (all female too) but she is clearly very traumatised by the whole in and out of hospital experience. I will drop the CNS a message and see what comes of it.
Thanks again
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