its been a while since i posted last but it seems i have been struggling with all the after effects from chemo/radiotherapy i still have high levels of fatigue tired all the time i still have Reflux issues i am still awaiting outpatient Appointment for nephropathy caused by the chemo it seems every week there is something different i have been the GP multiple times with issues low mood low bloods there verdict PTSD and depression from having cancer in the first instance.
I've been wondering do other people still feel feel the same after they have completed the treatments and try to get there lives back to normal your thoughts please.
Hi again Tonyb9127 ....yes indeed, the post treatment recovery can take much longer then you would first immagin.
I have had a completely different journey with regards to the 2 types of Lymphoma and the main 2 years treatments I had....... My Consultant told me that going through the Lymphoma Treatment process is like doing a boxing match and a marathon every day over the months of treatments and this was done without any training.
Think doing the London Marathon without any training and you had to finish it as your life depended on it……. this is the journey you have been on so it most likely will take much longer than you would ever think to get back to some normality.
As the others have said....... 'talking' to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing and many centres run Hematology Support Groups.
You may want to also check out Lymphoma Action. Lymphoma Action is the main UK Lymphoma Specific Charity who have lots of good reliable information, videos..... basically all things Lymphoma....... pre, during and post treatment.
They run various Support Platforms… I highly recommend these groups as this will widen your support base and there is nothing better than ‘talking’ with others who have walked or are walking the same journey..... especialy their monthly on-line Remission Group.
They also run the very good Lymphoma Focused Live your Life Course that is a peer-led self-management course.
The LA helpline is open every week day from 10 till 3 on 0808 808 5555. This is a safe place to talk things through and get support.
