My daughter had her avd treatment delayed 1 week due to low neutrophils. She is on 8 treatments put of 12, was on abvd but after 2 cycles she was in remission according to ipet scan. They dropped bleomycin but on the 8th treatment her counts were low sobthey delayed it a week. Has anyone else had a delay for a week
Hi Galquestions19e346 and a warm welcome to this corner of the Community although I am sorry to hear about your daughter’s diagnosis and your concerns. I am Mike and I help out around our various Lymphoma groups.
I don’t have Hodgkin's Lymphoma but for some context about me. I was officially diagnosed way back in 1999…… although I now realise I had most likely been living with with my rare (8 in a million) incurable but treatable type of Skin (Cutaneous) T-Cell Lymphoma……. for much longer.
I eventually reached Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-cell lymphoma not otherwise specified (PTCL-NOS) was then presenting so although my Lymphoma ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
I can understand your concerns…… but be assured, delays like these happen to most people….. it happened to me three times lasting a week to just over 2 weeks……. and it made no difference to outcomes.
The time between treatments are often seen as a basic guide for scheduling but there is definitely space in the schedule for delays.
In way of some encouragement……
I was 44 when I was diagnosed in 1999 age 44 when our daughters were 14 and 18…… but we went on to see our daughters graduate, get married, set up very successful businesses and provide us with 4 beautiful granddaughters….. I turn 70 at the end of this year and I am coming up to 10 years since my last treatment.
((hugs))
