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This as part of the first details we got after the biopsies etc...is this the thing that other folks post, that say what your cancer actually is?? It seems the only bit of info we have which looks anything like the things I have seen on other peoples...
Hi All , Not sure what to type ? Not used to forums, chat rooms etc . My wife is still in hospital four weeks after surgery for grade 4 tongue cancer which had spread to her Lymph nodes . She has had a Pec major reconstruction of her tongue as her forearm...
Hi everyone, 8 weeks ago I had an operation to remove cancer from my gums, palate and cheekbone. My facial muscle was cut leaving me with numbness in that area. I am worried I won't regain a reasonable opening of my mouth. I am aware that with RT it...
Hello everyone, yesterday I had results back from Pet and CT scan, which was no cancer spreading which was fantastic. However lympthatic lump on neck has got smaller after chemo radiotherapy . But could still be felt by consultant, was offered 2 choices...
Is that just me, as a partner doing the support thing. My tolerance levels seem to have shrunk to the size of shrivelled walnuts!!! I feel so furious some days! I am renown for not even having a temper to lose, but somedays,now, wow!!! A 'friend' had...
Hi, My husband is in hospital today having a Scapula Free Flap Operation , he has osteoradionecrosis which is due to Tongue Cancer in 2008 which was very advanced so Radiotherapy Treatment was harsh , i am finding it hard to find Forums where there...
I am sorry to ask because I had written it down and lost the paper, any recommendations for my mouth, it feels like the bottom of a cage, not sure what was in the cage but it couldn't have been good. The taste is just horrible. trying sips of water and...
Hi all, it’s stupid o clock at night. I can’t sleep. I was finally staged today, at the moment Im T4. N1. M0. Base of tongue SSC HPV positive, but the N might change due to a query on the Pet scan… I felt so positive because the M was 0 and it’s supposedly...
T2N1M0 HPV diagnosis. I opted for surgery which was performed on 18th Nov 25. Neck dissection to remove right handside neck lymph nodes and my right tonsil where the tumour was. I'm still experiencing some post op arm and collarbone pain and movement...
Hi all. I am day 10 of partial glossectomy on right lateral mid tongue, 2p size removal and 1cm depth. Only T1. I have no fever, no discharge and speaking better than ever expected but yesterday and today I am very conscious of the area and it feels lumpy...
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