T2N1M0 HPV diagnosis. I opted for surgery which was performed on 18th Nov 25. Neck dissection to remove right handside neck lymph nodes and my right tonsil where the tumour was. I'm still experiencing some post op arm and collarbone pain and movement restrictions but on the whole fine. Only 3 days in hospital, biggest shock was the size of the scar and the drain but all healing lovely now and really not that noticeable. My question for discussion is the need for radiotherapy after.
I wasn't convinced by any facts given to me that it was necessary, despite consultant recommending I did have it. This is even though he said, after the surgery, there was probably no more cancer cells in my body. The margins following surgery were good and showed no cancer. The short term and long term side effects of Radiotherapy just didn't seem worth experiencing and seriously affect quality of life. So I haven't pursued having radiotherapy. No idea on any follow up monitoring as yet.
Hi MiniT, welcome to the group from me. It's good to hear you are healing well after your surgery. There are a few people on here who have decided not to have RT due to having good margins, there is always the option to have it at a later date if needed. Hopefully someone who chose not to have it will come along to tell you about their case. Stick with us, you can ask any questions or discuss anything you want on here.
Ray.
That's exactly what I did after 2 different sets of surgery for H&N cancer CUP. No definite target - I saw no reason to use my one shot at CRT.
I went onto watchful waiting. Monthly checks. A few scares then back in late 2023 the cancer once again made itself known with a target worth tackling with CRT. Now 2 years post CRT and 6.5 since first diagnosed.
Even though the margins were clear, the recommendation was still to have Radiotherapy due to groupings they put people in, dependent on size of lymph node affected by the cancer and other criteria they didn't tell me. So basically they put everyone into low, intermediate and high groupings and they classed me as intermediate. Guessing they just want to be as thorough as possible but is such aggressive treatment really needed.
Guessing they just want to be as thorough as possible but is such aggressive treatment really needed.
We never know. I wasn’t given the option as surgery would have been life changing. Peter’s watch and wait worked for him and the radiotherapy was there when he needed it.
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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