Is this our diagnosis?

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This as part of the first details we got after the biopsies etc...is this the thing that other folks post, that say what your cancer actually is?? It seems the only bit of info we have which looks anything like the things I have seen on other peoples post?

I also have a longer piece of translated blurb that we got after the PET scan (this thing was before) :

ICD-0 code 8085/3 Basaloid squamous cell carcinoma HPV associated WHO 2023

Decided to post the long thing as well:

Hi Deb, I've translated with Google translate from ab OCR program. This is what it's come up with.

Bruce xx

HISTORY Squamous cell carcinoma of the left parietal tonsil (associated with viral PGI infection), diagnosed by histological examination on 10/09/2028. Initial staging. METHOD After intravenous administration of 10.75 mg of E-18 EOD, the patient remained at complete rest for 60 minutes. Then, computed tomography (64-octave CT) and digital positron emission tomography (PET) were obtained with a PET/CT scanner, from the base of the skull to the upper third of the thighs. The PET images were corrected for attenuation (CT attenuation correction) and the images were fused ({µ50}). The blood glucose was 92 mg/dl.

OVERALL CERVIX: Significantly increased uptake of the radiopharmaceutical is observed in the area of the left parietal tonsil with extension to the corresponding base of the tongue (55/21.1). Also, significantly increased uptake of the radiopharmaceutical is observed in the lymph node block in the area of the left superior and middle jugular chain (85/14.4) as well as in the right superior jugular lymph nodes (95/95/9.4).

THORAX: Normal distribution of radiopharmaceutical in the lungs and mediastinum. UPPER ABDOMEN: Normal distribution of radiopharmaceutical in the liver, spleen, intestine, kidneys and adrenal glands. MUSCULOSKELETAL SYSTEM: Physiological distribution of radiopharmaceutical.

CONCLUSION 1. Significant hypermetabolism in the area of the left parietal tonsil with extension to the same base of the tongue, compatible with the known neoplasia. 2. Secondary lymph node localizations in both cervical regions, as above, more intense on the left. 3. Rest of the PET/IOT examination negative for the detection of distant secondary localizations.

Beesuit 1 month ago

We tend to use the TNM classification of staging explained here

https://www.cancerresearchuk.org/about-cancer/mouth-cancer/stages-types-grades/stages-oropharyngeal

Mine was T2N0M0 P16+

Debbie N26 said:
ICD-0 code 8085/3 Basaloid squamous cell carcinoma HPV associated WHO 2023

This describes the type of cancer and whether it’s virus driven.
Mine was squamous cell carcinoma P16 +
P16 is a surrogate marker for HPV, it involves staining the cancer cells and examining the slide under a microscope. It avoids having to look for viral DNA which though more accurate is more difficult to do.
Basiloid just describes the type of squamous cells.
Hope this helps.

Dani

Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

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PFJTHS 1 month ago

Just to add to what Dani has said the ICD code is an international code for the cancer you have. This enables national and world wide comparisons of things like prevalence and outcomes so that researchers can improve treatments. It also helps hospitals get paid the right amount for your treatment pathway in the UK.

Peter

See my profile for more details of my convoluted journey

Sophie66 1 month ago

Hi Debbie. Wow that sounds really complex and way beyond my understanding. I understand tonsil and tongue cancer and HPV and that is enough info for me. I never got into the intricacies of my cancer and only understood that it was a squamous cell cancer leading to jaw cancer. That was enough for me but I understand that there are others out there who really want to understand the nitty gritty. I trusted my surgeon would do right by me and he did. I didn't know the questions to ask and did not at that stage even understand that there were stages of cancer. In spite of that I am really happy with the treatment I had.

Lyn

Sophie66

Debbie N26 1 month ago in reply to Sophie66

Hi Lyn, thanks for the reply. I think here its so very different, you really have to do a lot yourself...and they expect you to look after your own notes, and any x-rays/scans.pets etc...we have a neat little plastic wallet with it all in...and of course its all in Greek so we have been lucky to get bits translated by a UK chum whose good with tech or we would barely know anything!!!!

and Greeks don't do small talk, its all very blunt. When we got given the diagnosis it was tad brutal!

Sophie66 1 month ago in reply to Debbie N26

Hi Debbie. I didn't realise that you live in Greece. The language issue must make it quite hard. Thank goodness for this forum as it doesn't matter where you live you get great support. Hoping you and your husband are doing well.

Lyn

Sophie66

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Is this our diagnosis?