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Hurray I have made it finally to having 6 month checkups with my surgeon after 3 years of 3 monthly checkups. I might even make the 5 year mark this time and be discharged. In 2013 when I had my first jaw cancer I made it to 2019 and was just about to...
So after base of tongue 7 years ago I developed ORN of right jaw. I have now been on PENTCLO for 3 years and up till a few weeks ago seemed to be going well. 3 weeks ago I had a heart attack and a stent inserted. I’m not sure if a coincidence but since...
Hi , this is my first time posting , I was diagnosed with tongue cancer on June 18th , came as a shock as I had a growth on my tongue for my months (growing out the way) and everyone said it was nothing sinister. Biopsy to remove it showed it was cancerous...
Hi. Currently in palliative care , anyway i have really bad oral thrush, its ok until i try to eat and then terrible like eating glass . Any suggestions? On Nyscan which seems to cleared up mouth but not throat
Hi All, I wanted to reach out and ask if anyone had experience of osteoradionecrosis of the temporal bone (commonly referred to as TBORN)? I finished my radiotherapy in April 2024 (Mucoepidermoid Carcinoma of Parotid Gland, surgery followed by 30...
hi all iam wondering if anyone on here has sufferd with a loss of voice almost a year since finishing radiotherapy and a bit od chemo for throat cancer? my voice was fine and 1 day it went and its still not come back almost a yr post treatment this has...
Hello, I hope everyone is well. I've not been on for a while as I've been trying to recover. I'm 7 weeks out of my treatment now (33 fractions 5/6 cisplatin) and 1 bout of neutropenic sepsis right at the end of treatment. Just a few questions; Usually...
Hi All. I'm new here and feeling very anxious. Having had slightly enlarged lymphnodes in my neck and above my collar bone on both sides, my GP made a 14 day referral for "suspected head/neck cancer". I saw the consultant 16 days later who said the back...
I had a laser excision to remove a white patch (leukoplakia)) from under my tongue on the righthand side a couple of months ago. At my follow-up appointment this week, I was told that they had removed a large area and that there were some 'suspicious...
Need help & advise on how to cope & stop scrolling endlessly through google etc for answers. Lump on side of neck, no other symptom (although now after looking through google I think I have every symptom under the sun). My mum first noticed the lump...
