Uncertain about the future after laser excision on tongue

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I had a laser excision to remove a white patch (leukoplakia)) from under my tongue on the righthand side a couple of months ago.

At my follow-up appointment this week, I was told that they had removed a large area and that there were some 'suspicious cells' in the middle.

Apparently, this means that I'm at 'high risk' of things 'turning nasty'.

When I asked about the risk of the leukoplakia recurring, I was told that they could not say.

My next check-up is just before Christmas

I appreciate that in many ways, I've been given good news. Even though, I'm otherwise healthy, I'm active and busy, I'm left feeling as though something is hanging over me and I'm just waiting for it to happen.

How do others cope? How can I get over the feeling of doom and gloom, and start to move forward positively?

  • Hi....welcome to our little community.

    I haven't had leukoplakia but in a similar way the threat of recurrence that hangs over us cancer patients feels the same. I have done everything I can to keep my mouth clean, never smoke and drink very little alcohol. I make sure my diet is full of proper home cooked food and antioxidants and I have regular check up at my dentist.  That's all that is in my  power. As there is nothing else I can do I put the fear away. That's not to say there aren't wobbles along the way but I have a three week rule which has served me well. Anything new that is still present in three weeks gets checked over. There has been only one, a traumatic ulcer on my tongue. I have a night time mouth guard now and it hasn't happened again. I keep busy doing the things I love and try not to waste time on stuff I have no control over

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Besuit, Thank you. This is really helpful.

    I don't smoke and, although I was never a heavy drinking, I've stopped completely (easier for me than trying to only drink a little). 

    I realise that this is a new way of being that I have to give myself time to come to terms with - it's not something that I can just snap out of. Your 3 week rule sounds good as well.

  • it's not something that I can just snap out of.

    No you can't but time makes it better and in the meantime we have to find a work around

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Beesuit

    Thank you - this is very reassuring 

  • Hi Lina. What Dani says is exactly right. It takes time to come to terms with things and then you start to accept them and it becomes easier and the doom and gloom lifts. I came to a point where I decided that worrying about the future meant that I was not enjoying the present so moved forward. The worry paralyses you for a while but as Dani says you take all the precautions you can as this is all you can do. Life is still for the living and no one knows the future.

    Sending you my best wishes

    Lyn

    Sophie66