Roof of mouth water blisters / sharp pain inside throat.

Janiem said:

water blisters appear

This is really not uncommon. It’s due to blocked ducts in your recovering minor salivary glands. It does go but can take its time. There was a thread about this some time ago. I’ll see if I can find it for you. 

Thank you. I really need to understand what's going on and what I can do ? 

Here you are 

https://community.macmillan.org.uk/cancer_types/head-neck-cancer-forum/f/diagnosis-and-treatment/284915/tongue-cancer

And

https://community.macmillan.org.uk/cancer_types/head-neck-cancer-forum/f/updates/287968/tongue-cancer

I’ll tag Jackie  she may be able to help 

Jg123 

Hi Janine, so sorry to hear you are going through this. I had mouth ulcers during my six weeks of RT. They started at end of week two and lasted till two three weeks after it finished. Then about a week later I developed water blisters that was about start of August 24.  I was going up the walls with them. Sometimes they would appear in a cluster and I would be in agony. Nobody knew what to do to help me. They would last about two three hours then burst sometimes they were really big and so painful. I told my max fax at one of my appointments and he said he only ever had a few patients who had them and they should disappear within the year. I was devastated as I thought how could I stick these for another ten months. I tried everything. Avoiding certain foods and fruit etc but nothing seemed to make a difference. They always seemed to appear at different times of the day especially around meal times as if my mouth knew I would be eating soon. I tried difflam oral rinse before I ate just to numb my mouth so I could eat even though I couldn't taste it lol.  I also used gel x spray it did help a bit and the gelclare before I ate. It didn't help really. I really was in agony then about end of November they suddenly started to come every other day and by December they disappeared. I know this might not be what you want to hear but that was my experience yours could be different and could disappear much quicker. I really really feel for you as I know how painful they were. I really hope you get some ease soon. Nothing really helped me it seemed to be just time in my case. Thinking about you  . Not many people seem to get them for as long or at all so I think they just don't know how to treat them. I was told to take morphine but I didn't want to. Take care and sending hugs xx

Thank you. It's good to know it got better eventually. I always seem to get the thing that no one else gets! 

I wish there was an answer as to what's causing them.  

Thank you for your response it very helpful. 

Janiem I was like you I couldn't imagine my life without them every day then as if by magic they left so don't give up hope. I can't even remember them now so hopefully you will be the same. I took photos of them to show my dentist and consultant as when I went to their appointments they were never there lol . As you say it was always before meal times . But they will go hopefully so stay positive and keep trying to eat. I liquidised my food when I couldn't swallow with the pain so I wouldn't drop weight. Xxx

Can I ask the timeline?  How long they seemed to last for you and yes mine seem to conveniently disappear when I have appointments . I think the consultant thinks I am mad 

They might have appeared about 12.30 every day and depending on how many I got some days one or two some days about five or six all mostly on my tongue.  Sometimes I got them on the inside of cheek or inside my lip. They lasted anything from three hours to lasting from lunch to dinner time if I had a lot of them. I could actually know when they were coming as I felt them start as the pain was awful. I know what you mean about not being there when you wanted to show your doctor lol. It was as if you were making it up lol. Take a picture if you can and show him next time.

I am at my 10th month of  radiation. I think the baking soda and water really helps If that was what you can eat, I would stick with that The shakes are a lifesaver get As many as you can in good luck and stay strong!!!