Tongue cancer

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Hi was wondering if anyone experienced this. I'm 19 weeks post RT now. Had head neck dissection and stage one cancer cut from my tongue. No lymphnodes spread. My question is I get a lot of water blisters on my tongue but have never had any sores on my cheeks etc. all seems to be on my tongue . Yesterday I developed a white patch looking sore on my cheek opposite the top of my upper teeth. It felt like an ulcer but is only white. I'm obviously very worried now and have to wait till Monday to contact my nurse. Just wondering can RT still do this or should I be worried. I am stressing about it today.  Could it be irritation or something else. Thank you. 

  •   Could it be irritation or something else.

    Dry mouth causes lots of problems like this. Even early on in recovery the three week rule is a good one. If it’s still there three weeks after you spot it then have it looked at. 
    It’s really hard early on but does get easier. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thank you Dani I am just stressing incase the cancer has spread to my cheek . The things that go through your head are so worrying. I didn't bite my cheek or anything so it just appeared out of the blue yesterday. Thank you xx

  • Thank you Dani I am just stressing incase the cancer has spread to my cheek

    That is so unlikely really. Hugs 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Hi I can still get ulcers on my cheeks even 6 years later. Like Dani says the 3 week rule is a good one. None if mine ever lasted more than 10-12 days. I used to use the gelclair that I had in treatment.  Now I can use bonjela  think it would be too strong for you. I also have aloclair in my emergency pack most chemist sell that or Amazon.
    For me food used to set them Off simple things like cheese yoghurt couldn’t go near vinegar tomatoes anything minty the list was long.  Plus of course dry mouth is also a major issue.
    Try not to worry but yes contact your cns on Monday to ease your mind. They may want a photograph sending if you’re not due to see them.

     hugs Hazel 

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • PS

    I found a really good treatment for the odd sore patch is corsodyl gel. It works wonders for me 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge

  • Thank you Hazel, I know I'm probably overthinking it . Just so early in my recovery and it worries me. I will phone my nurse on Monday. My max fax consultant is so good he will bring me in to look at it. That will reassure me. I just had my monthly apt on Wednesday past. Feel stupid annoying them soooo soon. Thank you hazel for your help xxxx

  • Thank you Dani will give it a try xxx

  • It will get easier. I was lucky I never stressed but we are all different. 

    Let us know how you get on  

    Hazel  

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a webinar i did with Oracle explaining the process of diagnosis. 

  • Will do Hazel. Thank you xx Two hearts